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An Essential Guide to Caring for People With a Learning Disability and Autistic People Enabling a Cross-Field Approach.? 1st Edition

An Essential Guide to Caring for People With a Learning Disability and Autistic People Enabling a Cross-Field Approach.? 1st Edition
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An Essential Guide to Caring for People With a Learning Disability and Autistic People Enabling a Cross-Field Approach.? 1st Edition
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This essential text presents the core information that all nursing students and apprentices along with other key health and social care professions, regardless of field, need to know about caring for people with a learning disability and autism. It outlines some of the key challenges faced by people with a learning disability and autism and ways in which good care can improve their quality of life. People with a learning disability and autism are more likely to need support with aspects of everyday life, be marginalised within society, including within health and social care, and die younger than the rest of the population. They are also more likely to have additional communication needs, sensory processing difficulties and require significant support to access healthcare as well as other opportunities across the course of their lives.

This innovative text highlights the core knowledge that all health and social care professionals need and emphasises the benefits of learning across different fields of practice. It presents information about common conditions, key skills, and where a standard approach may need to be changed when caring for person with a learning disability and autistic people. It demystifies key issues and commonly misunderstood concepts and topics including distressed behaviours, consent, and reasonable adjustments. The book also focuses on addressing health inequalities, improving communication, understanding mental capacity and presents case studies throughout to illustrate how care can and should be delivered.

Written for all who need to understand the needs of this population and to deliver care as effectively as possible this collaborative text brings together the voices of services users and their families and carers with those of nurses, other health professionals, lecturers and nursing students and apprentices.

CONTENTS

Section 1 – Why have we written this book?

1 The People who inspired this book

Helen Jones, Samantha Salmon and Andrea Page

2 The Power of Words, Why Terminology Is Important

Andrea Page, Samantha Salmon and Helen Jones. With a contribution from Emmie Jeffrey.

3 The Learning Disability Nursing Student and Apprentice Voice Samantha Salmon, Christine Cooper, Jamie White, Blessing Taiwo and Jemima Tandoh

4 About me and how I became Chief Executive of All Wales People First

Joe Powell

5 Learning from Lives and Deaths of People with Learning Disability and Autistic People – the National LeDeR Programme in practice

Katie Meah

 

Section 2: Lived experiences and professional insights: understanding care and treatment for people with learning disabilities and autistic people

6 Inclusive Communication: Creating Positive Outcomes – A Mother’s Lived Experience

Amanda Glennon

7 Autism and Learning Disabilities

Linda Woodcock

8 Nursing Observations and people with a learning disability: considerations

Dr Helen Clarke, Melanie Wakeman, Dr Andrea Page and Samantha Salmon

9 Protection of Body Shape

Sarah Clayton and Anna Goldsmith

10 Considerations for delivery of Cardiopulmonary Resuscitation (CPR) and choking management to people with profound and multiple learning disability and wheelchair users

Elisha Deegan, Dr Andrea Page and Dr Stefan Cash

11 Clinical holding

Dr Andrea Page, Alison Warren and Dr Helen Jones

12 The importance of equity and accessibility: radiotherapy treatment for people with cancer and learning disability

Kate Chadwick

13 Managing distressed behaviours in health care settings: applying low arousal approaches

Professor Andy McDonnell

14 Conditions that all nurses and allied health professionals need to be aware of in people with learning disabilities

Ruth Hirst, Sheryl King and Victoria Moloney

15 Epilepsy and individuals with a learning disability

Dr Helen Jones

16 Learning Disabilities and Stroke

Sarah Davies

17 The Mental Capacity Act and Consent

Dr Helen Jones

18 Transforming Care and mental health support for people with a learning disability

Farzana Follows

19 An Exploration of the Equality Act and Making Reasonable Adjustments

Dr Andrea Page, Dr Helen Jones, Sally-Anne Dicken and Samantha Salmon

20 Undercover Documentaries: An Insider View #

Professor Andy McDonnell

 

Section 3 Responding to Inequality and Inequity

21 Introduction – We are nursing in an imperfect world

Nikita Garrick

22  We are nursing in an imperfect world – reflections on the importance of staffing and skill mix

Sonia Allibone

23  Medication and diet in individuals with a learning disability

Baldwin Ngambi and Lee Vessey

24  Mental Capacity, Communication and Advocacy for People living with learning disabilities

Olumide Dada

25  A reflection on communication and the use of hospital passports within an acute hospital setting

Debbie Marsh

Chapter 26  The Last Word for now…

Andrea Page, Samantha Salmon and Helen Jones

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